2012 Family Medical Conference

Our 2012 Family Medical Conference will be held Thursday, August 16 through Sunday, August 19 in Bloomington, Minnesota, near the Mall of America which features an indoor amusement park, a walk-through aquarium, and much more. Watch this page for more details!

We hope you will join aproximately 300 family members gathering from around the world to network together and hear top medical experts share the latest in scientific research relating to Dravet Spectrum Disorders.

# # # 

2010 Family Medical Conference

Sponsors of the 2010 Family Medical Conference

Images from the 2010 Family Medical Conference

Photos by Kim Skriba

Dozens of children with Dravet surround Dr. Dravet with love

The Villas Family talks service dog

Dr. Charlotte Dravet presenting her research

200 Dravet family members making friends at dinner

Nicole Villas explaining genetics of Dravet

Vice President, Ryan Day, with Kyle Spiers, fathers of children with Dravet

Marilyn Baker with Dr. Dravet, Karen Mull, Lisa Smith & Joan Skluzacek

Leslie & Zach Moccia entertain the kids

Jordan and Paula Lyles share stories with the crowd

2010 Conference Speakers

• "Clinical characteristics and optimal treatment of Dravet syndrome"
  Dr. Linda Laux - Children's Memorial Hospital
• "Bone Health"
  Dr. Christina Bergqvist - Children's Hospital of Philidelphia
• "Ketogenic Diet"
  Dr. Eric Kossoff - Johns Hopkins Hospital
• "Genetic etiologies of ion channel epilepsy: SCN1A and Beyond"
  Dr. Parul Jayakar -Miami Children’s Hospital
• "Dysautonomia"
  Dr. Beverly Wical -Gillette Childrens Healthcare
• "SUDEP"(Sudden Unexplained Death In Epilepsy)
  Dr. Charlotte Dravet -Mersile, France
• "Working With Your Medical Team (EMT, Emergency, General Practitioner, P.A., Nurses)
  Karen Mull P.A. and Mother -Salisbury Hospital

# # #