Dravet.org - Formerly Known as IDEA-League

About Dravet

We are a powerful global partnership of parents and medical experts united in the goal of improving treatments for children with Dravet (Syndrome), Spectrum Disorders, while empowering families to cope with the daily challenges of this disorder. Learn More

About Seizure Disorders

Have Your Questions Answered By Our Medical Experts

Patients & Families

Connect with Other Families Make Friends & Get Support

Join Our Patient Registry! Make sure your child is counted for research

NYU Epilepsy Center Partners with Dravet.org on SUDEP in Dravet Syndrome Children Study

New York University (NYU) Epilepsy Center is partnering with Dravet.org on a new study to determine whether the sudden death of some children with Dravet syndrome is due to epilepsy or other causes. The study will collect information worldwide from parents of children with Dravet syndrome who have died suddenly. Find out how you can participate.

Stories of Hope

Each of our children has a story. View our Stories and Be Inspired!

News & Events View All

Get Monthly Updates on the Latest Research & Medical Findings

February 17, 2012
Study Suggests Autoinjector for Status Epilepticus May Be Possible...
This week’s New England Journal of Medicine features a research article highlighting the results of the NIH Rapid Anticonvulsant Med... Learn More
February 17, 2012
New Drugs Suppress Absence Seizures...
A team of Canadian and Australian researchers led by the University of British Columbia have announced that they have developed two new drugs that ... Learn More

Dravet.org formerly known as IDEA-League

helping the child while finding the cure